Curing NF With Jack

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Jack, far right, with family and friends

One of the first things Jack Burke will tell you when you meet him is that he’s a golfer, better at driving than putting; and then he’ll show you his driving stance.  The little man — a kid who’s dealt with more than most adults by age 8 — has Neurofibromatosis (“NF”), and while he could teach you a thing or two about his genetic disorder, but would rather teach you how to follow through on your swing.

Friday at Westfields Golf Course, Jack, some of his NF buddies, and a lot of generous donors and supporters came together for the 2nd Annual Cure NF with Jack DC Golf Classic.  Attendees teamed up for a day of playing some great golf at one of Jack’s favorite courses whileIMG_8731 assisting in research — as well as the development of treatments and a cure for NF.

Jack was diagnosed with neurofibromatosis type 1 (NF1) at two years old and it was later discovered that he also has a plexiform neurofibroma tumor behind his left eye.  His family, which lives in Atlanta, regularly travels to Children’s National Medical Center in DC for MRI monitoring and consultations with NF specialists.  The annual event was organized in conjunction with one such trip by family friend, and Long & Foster realtor, Matt Benson.

IMG_8730A hole in one Lexus challenge and other creative competitions kept the day fun and exciting before Jack and his family greeted all players and spectating participants back in the clubhouse for a moving dinner and reception.

There were fierce foursomes, but how about fundraising?  A single donor check for $25,000 out-raised funds from the inaugural event in 2012, which, combined with all other generous giving from the day, made the 2nd Cure NF with Jack Golf Classic the most successful to date… but Jack will tell you, your game can’t be great unless you just do it “over and over again.”

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